I have observed with deep disappointment the hostility that larger advocacy foundations often direct towards emerging foundations and autism startups. This is particularly disheartening, as autism is far bigger and more complex than any single person or organization can tackle alone. The reality is that we all experience autism differently, which means that when someone starts a new foundation or autism-centered business, they are addressing a specific challenge that deeply resonates with them. In doing so, they create a base for countless others in the community, validating their experiences, their pain, and their need for change.
Autism statistics are skyrocketing each year, with more and more cases presenting significant challenges. This growing crisis demands an all-hands-on-deck approach, and who better to lead this charge than those who understand the journey firsthand? One of the most empowering things we can do is to take up space and actively join the fight for the betterment of our lives, rather than waiting and expecting to be rescued by people who have never walked a day in our shoes.
No one chooses autism; autism chooses us. Those of us on this journey live, walk, talk and breathe it. Autism consumes so much of our lives that engaging in work around it often does not feel like “work” but more like a calling. This is because we are all called to contribute our part in healing our lives and the community at large. Many find themselves out of formal employment due to the demands of autism, so it only make sense to seek income-generating projects within the community – projects that arise from the urgent need for services like aftercare programs, respite care and advocating for autism friendly spaces to name just a few.
Contrary to misconceptions, not everyone is driven by the desire to make a quick buck. In fact, many founding members of advocacy groups, nonprofit organizations and even autism centred private businesses are self-funded and motivated by the goal of adding value and support to the community. There is more than enough work to go around, and no one’s light will dim just because another has joined the cause. This idea that only a select few should occupy space is not just harmful but also stifles collective healing and development, keeping us trapped in a cycle where essential interventions and resources such as decent government-subsidized boarding facilities and adult centres remain out of reach for our community. It is a narrative that must be challenged and dismantled for the greater good!
One of the most important lessons I have learned recently in my advocacy work with Thelle Mogoerane Hospital is that lone voices, no matter how passionate, often struggle to create substantial impact. Our power lies in numbers and when we pull our collective fires together – our knowledge, our resources and support one another, we not only amplify our voices but also inspire a sense of solidarity and hope. We give each other the courage to keep going, even when the road feels overwhelmingly difficult. Through collaboration we create a path to real change, driven by the collective spirit of mothers who know that the stakes could not be higher!
Similarly our shared experiences, while varied, connect us in a profound way. By fostering a spirit of cooperation rather than competition, we can build a stronger network of support, advocacy, and solutions that will benefit everyone, ensuring that no family or individual is left behind on this journey.
Now, more than ever, we need to work together to create sustainable, meaningful change. It’s time to put aside the ego, the turf wars and the gatekeeping, and recognize that in unity lies the true power to make a difference.
My wish is that we acknowledge and uplift one another, celebrating the unique contributions each person brings to this shared mission. Only then can we bring about the real solutions our community so desperately needs.